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Cover art for: Good Practice – Towards Independent Living – A collection of Examples from Europe

Good Practice – Towards Independent Living – A collection of Examples from Europe

Published: March 2019

This Collection is a joint initiative of the European Network on Independent Living (ENIL) and the European Disability Forum (EDF). It features examples from different EU Member States, which to a different extent facilitate the right to live independently in the community.

Author: Lilia Angelova-Mladenova
Organisation: European Network on Independent Living and European Disability Forum
Format: Document (pdf)
Pages: 32
Region:International, European Union
Cover art for: About Community Living

About Community Living

ACL’s creation was rooted in the fundamental idea that people with disabilities or functional limitations of any type, regardless of age, have a common interest in being able to access home and community-based supports and services. And further, that these supports make the difference in ensuring that they can fully participate in all aspects of society, including the option to live at home.

Organisation: Administration for Community Living
Author Link:https://acl.gov/
Format: internet (web)
Region:International, United States of America
Cover art for: Myth Buster: EU Funds and Independent Living

Myth Buster: EU Funds and Independent Living

Published: December 2019

This Myth buster is aimed at all those advocating for ESI Funds to be used to support the right to independent living, and for those involved in the programming, implementation and monitoring of these funds.

Organisation: European Network on Independent Living
Author Link:www.enil.eu
Format: Document (pdf)
Pages: 36
Region:European Union
Cover art for: The Research and Training Center on Independent Living

The Research and Training Center on Independent Living

The Research and Training Center on Independent Living is made up of a team committed to research that can be used to enhance Independent Living (IL) for people with disabilities.

Organisation: University of Kansas - Research and Training Centre on Independent Living
Format: internet (web)
Region:United States of America
Cover art for: Vulnerability in Adult Homesharing Situations for Persons with Disabilities

Vulnerability in Adult Homesharing Situations for Persons with Disabilities

Published: 2012

This papers central purpose is to highlight some of the more likely vulnerabilities that may be present for the people who find themselves resident in supported adult home sharing living situations.

Author: Dr. Michael J. Kendrick PhD
Organisations: International Journal of Disability, Community & Rehabilitation
Author Link:www.ijdcr.ca
Format: internet (web)
Region:International
Cover art for: The Zero Project Report 2019 on Independent Living and Political Participation

The Zero Project Report 2019 on Independent Living and Political Participation

Published: January 2019

66 Innovative Practices, 10 Innovative Policies, from 41 countries International study on the implementation of the UN Convention on the Rights of Persons with Disabilities – “For a World without Barriers”

Authors: Thomas Butcher, Peter Charles, Loic van Cutsem, Zach Dorfman, Micha Fröhlich, Seena Garcia, Michael Fembek, Wilfried Kainz, Seema Mundackal, Paula Reid, Venice Sto.Tomas, Marina Vaughan Spitzy
Organisation: Essl Foundation
Format: Document (pdf)
Pages: 164
Region:International, European Union
Cover art for: European Network on Independent Living

European Network on Independent Living

Published: December 2013

Independent Living is the daily demonstration of human rights-based disability policies. Independent Living is possible through the combination of various environmental and individual factors that allow disabled people to have control over their own lives. This includes the opportunity to make choices and decisions regarding where to live, with whom to live and how to live.

Organisation: European Network on Independent Living
Format: Document (pdf)
Pages: 6
Region:European Union
Cover art for: Homeshare and NDIS

Homeshare and NDIS

Published: April 2014

Homeshare is a simple, normative, and effective way of supporting people with a disability to live independently.

Organisation: Homeshare Australia and New Zealand Alliance (HANZA)
Format: Document (pdf)
Pages: 9
Region:Australia, New Zealand
Cover art for: Inclusion International Global Report On Article 19 The Right To Live And Be Included In The Community

Inclusion International Global Report On Article 19 The Right To Live And Be Included In The Community

Published: October 2012

Global Report on Article 19: The right to Live and be included in the Community.

Organisation: Inclusion International
Format: Document (pdf)
Pages: 165
Region:International
Cover art for: Barriers to Independent Living for Individuals with Disabilities and Seniors

Barriers to Independent Living for Individuals with Disabilities and Seniors

Published: 11th June 2014

Findings not only revealed a high degree of overlap between identified barriers and their importance ratings within groups but also showed clear differences in potential barriers across the groups assessed (individuals with disabilities and senior citizens).

Authors: Florence D. DiGennaro Reed, Michael C. Strouse, Sarah R. Jenkins, Jamie Price, Amy J. Henley & Jason M. Hirst
Organisation: Association for Behavior Analysis International
Format: Document (pdf)
Pages: 8
Region:International, United States of America
Cover art for: Moving to My Home: Housing aspirations, transitions and outcomes of people with disability

Moving to My Home: Housing aspirations, transitions and outcomes of people with disability

Published: August 2015

This study sought to identify the barriers and success factors that enable people with disability with individualised funding packages to move into housing which better suits their preferences and needs. The focus was on the aspirations and experiences of people with disability as consumers of housing.

Authors: Ilan Wiesel, Carmel Laragy, Sandra Gendera, Karen R. Fisher, Samantha Jenkinson, Trish Hill, Kate Finch, Wendy Shaw and Catherine Bridge
Organisation: Australian Housing and Urban Research Institute
Format: Document (pdf)
Pages: 123
Region:Australia
Cover art for: Reasonable and Necessary Support across the Lifespan: An Ordinary Life for People with Disability

Reasonable and Necessary Support across the Lifespan: An Ordinary Life for People with Disability

Published: October 2014

The paper takes an ‘ordinary life’ in 21st century multicultural Australia as its starting point because people with disability share the ordinary aspirations of their peers without disability but need reasonable and necessary NDIS support to achieve them. The ordinary life provides clues as to how these aspirations would typically be met providing a useful benchmark to guide understanding of reasonable and necessary support.

Organisation: Independent Advisory Council to the National Disability Insurance Scheme
Format: Document (pdf)
Pages: 76
Region:Australia
Cover art for: As If- Living Like Others- An Idealisation Of Life In Group Homes For People With Intellectual Disability

As If- Living Like Others- An Idealisation Of Life In Group Homes For People With Intellectual Disability

Published: 14th August 2020

People with Intellectual Disability (ID) in Sweden should be enabled to live like others. This life like others is realised in group homes that have little in common with a typical place to call  home.

Author: Petra Björne
Organisations: Department for Disability Support, City of Malmö, Malmö, Sweden ; Department of Clinical Sciences Lund, Lund University, Lund, Sweden
Format: internet (web)
Read time: 22 minutes(Approximate)
Region:International
Cover art for: Basic Income Plus: Is UBI consistent with the goals of the Independent Living Movement?

Basic Income Plus: Is UBI consistent with the goals of the Independent Living Movement?

Published: 2nd November 2019

UBI is a technical and political system for redistributing money directly to citizens. There are many good reasons to believe that such a system could have many positive impacts in terms of advancing human rights and reducing inequality.

 

Author: Simon Duffy and Jim Elder-Woodward
Format: Document (pdf)
Pages: 9
Region:United Kingdom
Cover art for: NZ Choice In Community Living Cabinet Paper

NZ Choice In Community Living Cabinet Paper

This paper asks the Cabinet Social Policy Committee to note decisions taken by the Minister of Health and Associate Minister of Health (Hon Tariana Turia) to demonstrate “Choice in Community Living”, which is an alternative to residential services for people with disabilities.

Organisation: Minister of Health New Zealand
Format: Document (pdf)
Pages: 9
Region:New Zealand
Cover art for: Meeting Canada’s Obligations to Affordable Housing and Supports for People with Disabilities to Live Independently in the Community: Under Articles 19 and 28

Meeting Canada’s Obligations to Affordable Housing and Supports for People with Disabilities to Live Independently in the Community: Under Articles 19 and 28

Published: May 2017

This submission is about the housing and supports gap facing persons with disabilities in Canada. It responds to the Special Rapporteur on adequate housing`s questionnaire and provides information for her report to the United Nations General Assembly 72nd session on the right to adequate housing of persons with disabilities.

Organisations: Alzheimer Society of Canada, ARCH Disability Law Centre Canadian Association for Community Living Canadian Mental Health Association, Toronto Branch Council of Canadians with Disabilities IRIS – Institute for Research and Development on Inclusion and Society People First of Canada Social Rights Advocacy Centre Wellesley Institute
Format: Document (pdf)
Pages: 18
Region:International, Canada
Cover art for: Every Australian Counts: A place I can proudly call home

Every Australian Counts: A place I can proudly call home

A summary of data collected by Every Australian Counts from over 650 people with disability and their families about housing.

Organisation: Every Australian Counts Campaign
Format: Flyer (pdf)
Pages: 11
Region:Australia
Cover art for: Every Australian Counts Campaign – Housing Stories

Every Australian Counts Campaign – Housing Stories

A summary of data collected by Every Australian Counts from over 650 people with disability and their families about housing, in an accessible format.

Organisation: Every Australian Counts Campaign
Format: Document (pdf)
Pages: 13
Region:Australia
Cover art for: YDAS PDF Project Housing and Support for Younger People

YDAS PDF Project Housing and Support for Younger People

Published: June 2013

This project provided an opportunity for the voice of younger people with disabilities to be heard in shaping policy and practice with respect to housing and support in a new disability funding paradigm, DisabilityCare  Australia, a National Disability Insurance Scheme.

Authors: Dr. George Taleporos, David Craig, Mark Brown, Cath McNamara and Sarah Forbes
Organisation: Youth Affairs Council of Victoria Inc. and Youth Disability Advocacy Service
Format: Document (pdf)
Pages: 85
Region:Australia
Cover art for: Getting a Life – Living Independently and Being Included in the Community

Getting a Life – Living Independently and Being Included in the Community

Published: April 2012

The purpose of this Study is to explore and set out the minimum conditions necessary to implement the UN Convention on the Rights of Persons with Disabilities, particularly the right to live independently and be included in the community.

Organisation: Office of the United Nations High Commissioner for Human Rights Regional Office for Europe
Format: Document (pdf)
Pages: 90
Region:European Union
Cover art for: Grounding The Right To Live In The Community (CPRD Article 19) In The Capabilities Approach To Social Justice

Grounding The Right To Live In The Community (CPRD Article 19) In The Capabilities Approach To Social Justice

This paper brings to bear the capabilities approach, a normative framework about human well-being, social development and social justice, to this central concern in disability rights, mental health ethics, and international human rights law.

Authors: Emma Wynne Bannistera, Sridhar Venkatapuramb
Organisation: International Journal of Law and Psychiatry
Format: Document (pdf)
Pages: 8
Region:United Kingdom
Cover art for: A Home That’s Right For Me

A Home That’s Right For Me

Published: June 2009

Summary Report of Policy Forums Sponsored by the Ministry of Community and Social Services- Ontario.
Prepared by: Jenny Carver & Associates – July 2009

Format: Document (pdf)
Pages: 40
Region:International, Canada
Cover art for: Living in your own home with a disability – the experiences of people with disabilities of support from their community

Living in your own home with a disability – the experiences of people with disabilities of support from their community

Published: July 2012

The research report contains information gathered from interviews with 54 people with physical, sensory, intellectual and cognitive impairments aged between 19 and mid-60s living in six different parts of Ireland.

Authors: Hugh O’Connor, Maureen Gilbert and Bríd McGrath
Organisation: OCS Consulting For the National Disability Authority
Format: Document (pdf)
Pages: 87
Region:United Kingdom
Cover art for: Understanding Independent Living In Sweden An Overview

Understanding Independent Living In Sweden An Overview

Published: May 2019

The main purpose of this document is to provide a collection of information that will help to build a basic foundation of knowledge regarding the Independent Living Institute as an organization, the political and legal systems in Sweden, and the functions of overarching international institutions that influence the Independent Living Institute’s work.

Author: Alexander Caputo Janhager
Organisation: Independent Living Institute
Format: Document (pdf)
Pages: 33
Region:European Union
Cover art for: My Shared Life: Measuring the Outcomes of Shared Lives

My Shared Life: Measuring the Outcomes of Shared Lives

Published: April 2016

In 2014, Shared Lives Plus (the UK network for family-based and small-scale ways of supporting adults) commissioned PSSRU to develop an outcomes measuring tool so that there would be a consistent approach to gathering information across the sector.

Author: Lisa Callaghan
Organisation: Personal Social Services Research Unit (PSSRU) University of Kent
Format: internet (web)
Region:International, United Kingdom
Cover art for: Why Group Homes Are No Longer Optimal

Why Group Homes Are No Longer Optimal

Published: June 2017

In this brief commentary, Michael Kendrick argues that people with disabilities would not be well served in the limited life options available within group homes, particularly those gathered together in institutional sites.

Author: Michael Kendrick
Format: Document (pdf)
Pages: 10
Region:Canada
Cover art for: Living like everyone else

Living like everyone else

Published: December 2016

A  guide to new opportunities for supporting people with disabilities and complex needs to live in their own home.

Authors: Chris Fyffe, Astrid Reynolds, Prof. Jacinta Douglas, Tom Worsnop, and Kir Larwill
Organisation: Summer Foundation
Format: Document (pdf)
Pages: 108
Region:Australia
Cover art for: Conundrums of supported living: The experiences of people with intellectual disability

Conundrums of supported living: The experiences of people with intellectual disability

Published: 14th November 2016

Dissatisfaction with the inflexibility of the group home model has led to the growth of supported living that separates housing from support and is thought to have greater potential for better quality of life outcomes. Comparative studies have had mixed findings with some showing few differences, other than greater choice in supported living. By investigating service user experiences of supported living this study aimed to identify how the potential of supported living might be better realised.

Authors: Christine Bigby, Emma Bould and Julie Beadle-Brown
Format: Document (pdf)
Pages: 12
Region:Australia
Cover art for: Curtin Individual Supported Living Manual 2nd Edition

Curtin Individual Supported Living Manual 2nd Edition

Published: May 2017

The Manual builds on a Framework that was developed over two research projects carried
out between 2007 and 2011. This revised version was produced after the completion of a third
research project carried out over 2015-2017.

Authors: Professor Errol Cocks, Dr Stian H Thoresen
Organisation: Curtain University School of Occupational Therapy and Social Work
Format: Document (pdf)
Pages: 56
Region:Western Australia
Cover art for: Adaptable Housing for People with Disability in Australia: A Scoping Study

Adaptable Housing for People with Disability in Australia: A Scoping Study

The primary aim of the report is to consider the applicability and replicability of established design informed approaches for flexibility and adaptation that have been successfully employed in other contexts (such as the home office or housing for multi-generational families) to retrofitting housing for people with disability, which would also benefit the whole community. Such an approach goes beyond function and accessibility to consider the qualities that create a dignity-enabling home environment.

Authors: Maryam Gusheh, Catherine Murphy, Lucy Valenta, Nigel Bertram & Duncan Maxwell
Organisation: Monash University
Format: Document (pdf)
Pages: 50
Region:Australia
Cover art for: My Place – The Home Automation Project

My Place – The Home Automation Project

Published: August 2015

Enabling people with disability to live more safely, independently, comfortably and economically.

Authors: Greg Lewis, Tony Ryan, Phil Deschamp and Peter Dunn
Organisation: MY PLACE FOUNDATION INC.
Format: Document (pdf)
Pages: 47
Region:Western Australia
Cover art for: IAC Report Pathway to Innovative and Contemporary Options of Housing and Support

IAC Report Pathway to Innovative and Contemporary Options of Housing and Support

Published: May 2018

This paper is underpinned by the United Nations Convention of the Rights of Persons with Disabilities (UNCRPD) as outlined in the Objects of the NDIS Act. Article 19 of the UNCRPD – Living independently and being included in the community – outlines the most pertinent requirement in relation to housing and support; enabling NDIS participants the opportunity to choose where they live, with whom they live and have access to a range of in-home, residential and other services to support living and inclusion in the community.

Organisation: Independent Advisory Council
Format: Document (pdf)
Pages: 32
Region:Australia
Cover art for: Home is Where Our Story Begins

Home is Where Our Story Begins

In 2017 Inclusion BC and Community Living BC came together over the shared issue of inclusive housing for people with developmental disabilities. Together they formed the Inclusive Housing Task Force made up of people with lived and professional experience with inclusive housing and drew upon the expertise of approximately 80 individuals from around the province through a Housing Forum held in January 2018.

Organisation: Community Living BC and Inclusion BC Inclusive Housing Task Force
Format: internet (web)
Region:International, Canada
Cover art for: Shared Lives 16+ Evaluation Report

Shared Lives 16+ Evaluation Report

This evaluation used a mixed–method approach. Interviews with young people, staff, carers and local authority stakeholders were utilised as an evaluation of process to understand the experiences of implementation and the arrangements. A break-even cost analysis was used to examine the costs associated with the programme and the potential cost savings.

Authors: Dr. Zinnia Mitchell-Smith, Dr. Sue Caton and Dr. Ann Potter
Organisation: Shared Lives Plus
Format: Document (pdf)
Region:International, United Kingdom
Cover art for: Shared lives Plus: Shared Lives in Health

Shared lives Plus: Shared Lives in Health

Shared Lives Plus (SLP) has commissioned Cordis Bright to conduct research in relation to the Scaling Shared Lives in Health Programme. This report explores the impact of the Scaling Shared Lives in Health Programme on the use of Shared Lives services to support individuals with a health need in England. Additionally, this report identifies four case study schemes where individuals with a health need have been supported through a Shared Lives arrangement. This report builds upon the evaluation of the implementation of the first phase of the Shared Lives in Health Programme, conducted by Cordis Bright, PPL, Innovation Unit and Social Finance in June 2019

Organisation: CordisBright
Format: Document (pdf)
Region:International, United Kingdom
Cover art for: “Living A Good Life” Quality of Life and Homeshare

“Living A Good Life” Quality of Life and Homeshare

Community Living British Columbia (CLBC) is committed to a vision of supporting people with intellectual disabilities to live “Good lives in Welcoming Communities”. Home Sharing is a residential option that strives to support that vision. In general, the findings of this exploratory study revealed that overwhelmingly self advocate, homes share provider, and family member participants agreed that the home sharing model was flexible, adaptive, and supported quality of life more effectively than group homes.

Authors: Dr. Rachelle Hole, Dr. Tim Stainton & Assunta Rosal
Organisation: University of British Columbia
Format: Document (pdf)
Pages: 53
Region:International, Canada
Cover art for: Young people in Australian residential aged care: evaluating trends from 2008 to 2018

Young people in Australian residential aged care: evaluating trends from 2008 to 2018

The aim of this study was to evaluate trends in rates of young people entering and leaving residential aged care from 2008 to 2018.Many more young people are admitted to residential aged care  each year than return to community living, with no sustained change between 2008 and 2018 at the national level. Age standardisation is crucial for evaluating systemic population-level change regarding younger people living in residential aged care.

Authors: Mark G. Brown PhD; Glenda M. Bishop PhD; Di Winkler PhD; Jacinta M. Douglas PhD.
Organisation: Australian Health Review
Format: Journal (pdf)
Pages: 7
Region:Australia
Cover art for: The outcomes of individualised housing for people with disability and complex needs: a scoping review

The outcomes of individualised housing for people with disability and complex needs: a scoping review

Worldwide, disability systems are moving away from congregated living towards individualized models of housing. Individualized housing aims to provide choice regarding living arrangements and the option to live in houses in the community, just like people without disability. The purpose of this scoping review was to determine what is currently known about outcomes associated with individualized housing for adults with disability and complex needs.

Authors: Stacey Oliver, Emily Z. Gosden-Kaye, Dianne Winkler & Jacinta M. Douglas
Organisations: La Trobe University, Melbourne, Australia
Format: Journal (pdf)
Pages: 14
Region:Australia, International
Cover art for: Deinstitutionalisation Strategy in Greece

Deinstitutionalisation Strategy in Greece

This document describes the main priorities of the national deinstitutionalisation strategy for Greece. The social care reforms which are referred to in the document are particularly aimed at promoting and developing sound legal and financial frameworks addressing specifically the needs of the following target groups: children, children with disabilities, adults with disabilities and elderly; however, the outcomes of a more comprehensive, inclusive social protection system will be beneficial to all persons that may have support needs throughout their lives.

Organisation: European Association of Service providers for Persons with Disabilities (EASPD)
Format: Document (pdf)
Region:International, European Union
Cover art for: Deinstitutionalisation and community living – outcomes and costs: report of a European Study

Deinstitutionalisation and community living – outcomes and costs: report of a European Study

Volume 2 Main Report: The next section of the report describes briefly the methods used in each part of the project. The findings of the project are then presented in four sections. The first of these presents the results of Phase 1 and deals with the review of European and international data sources, the identification and collation of existing national data sources, their analysis and clarification of the adequacy and completeness of the data.

Authors: Jim Mansell, Martin Knapp, Julie Beadle-Brown and Jeni Beecham
Organisations: Tizard Centre, University of Kent
Format: Document (pdf)
Pages: 134
Region:International, United Kingdom
Cover art for: Deinstitutionalisation and community living – outcomes and costs: Report of a European Study.

Deinstitutionalisation and community living – outcomes and costs: Report of a European Study.

Volume 1 Executive Summary: This project aimed to bring together the available information on the number of disabled people living in residential institutions in 28 European countries, and to identify successful strategies for replacing institutions with community-based services, paying particular attention to economic issues in the transition. It is the most wide-ranging study of its kind ever undertaken.

Authors: Jim Mansell, Martin Knapp, Julie Beadle-Brown and Jeni Beecham
Organisations: Tizard Centre, University of Kent
Format: Document (pdf)
Pages: 14
Region:International, European Union
Cover art for: Who is Specialist Disability Accommodation for?

Who is Specialist Disability Accommodation for?

Although market and commercialised factors are important, we cannot be driven by these forces alone as we can lose sight of the actual person and the typical principles and practices of home. Home can become distorted with well-intended system efforts which can further marginalise people with a disability and foster notions of difference. For example, finding a home could become limited to finding a vacancy, an option to “fit” into, congregations of people who share the same diagnosis, a service setting, facility or residential service, a place to live or find shelter or a commercial activity driven by staffing concern, rules and regulations.

Author: Deb Rouget
Organisation: Belonging Matters
Format: Presentation (pdf)
Pages: 4
Region:Australia
Cover art for: From Institution to Community Living

From Institution to Community Living

The work centres on identifying five case studies from across the European region where an institution for people with disabilities including those with high/complex support needs, has been completely closed. The case studies span almost fifty years of time and work; in the view of the project team this provides a useful timeline that identifies how each has learned from the experience of the previous work and built an ever stronger and evidence informed approach to complete closure.
From the radicals setting out to close the institution in Trieste, led by Franco Basaglia, to the detailed and strategic approach in Moldova, each case study provides a good sense of the work needed and what it takes to succeed in completely closing an institution for people with disabilities.

Authors: Professor Dr Anne Rosken, Nic Crosby, Dr Peter Fuzesi
Organisation: European Association of Service providers for Persons with Disabilities (EASPD)
Format: Document (pdf)
Pages: 52
Region:International, European Union
Cover art for: Deinstitutionalisation and community living outcomes and costs: Report of a European  Study

Deinstitutionalisation and community living outcomes and costs: Report of a European Study

Published: October 2007

These country reports form the third volume of the final report from the European Union Project Deinstitutionalisation and community living – outcomes and costs: report of a European Study. There are 28 country reports included. For the most part, the reports have been written by the researchers and in some cases the experts in each of the partner institutions, using a variety of sources, including government policy, web-based documents, statistical reports and academic papers.

Author: Julie Beadle-Brown and Agnes Kozma (Editors)
Organisations: Tizard Centre, University of Kent
Format: Document (pdf)
Pages: 599
Region:International, European Union
Cover art for: The Outcomes of individualised housing for people with disability and complex needs

The Outcomes of individualised housing for people with disability and complex needs

Published: July 2020

The purpose of this scoping review was to determine what is currently known about outcomes associated with individualised housing for adults with disability and complex needs. Worldwide, disability systems are moving away from congregated living towards individualised models of housing. Individualised housing aims to provide choice regarding living arrangements and the option to live in houses in the community, just like people without disability.

Authors: Stacey Oliver, Emily Z. Gosden-Kaye, Dianne Winkler & Jacinta M. Douglas
Format: Journal (pdf)
Pages: 13
Region:Australia
Cover art for: Housing Choice and Control

Housing Choice and Control

Published: July 2006

This research examined two premises of supported housing: (a) that consumer choice/control over housing and support and the quality of housing are important contributors to the subjective quality of life and adaptation to community living of people with mental illness, and (b) that apartments provide mental
health consumers with more choice/control over housing and support than group living arrangements.

Authors: Geoffrey Nelson; John Sylvestre; Tim Aubry; Lindsey George; John Trainor
Format: Journal (pdf)
Pages: 11
Region:International, Canada
Cover art for: Conundrums of supported living: The experiences of people with intellectual disability

Conundrums of supported living: The experiences of people with intellectual disability

Dissatisfaction with the inflexibility of the group home model has led to the growth of supported living that separates housing from support and is thought to have greater potential for better quality of life outcomes. Comparative studies have had mixed findings with some showing few differences, other than greater choice in supported living. By investigating service user experiences of supported living this study aimed to identify how the potential of supported living might be better realised.

Authors: Christine Bigby, Emma Bould & Julie Beadle-Brown
Format: Journal (pdf)
Region:Australia, International, United Kingdom
Cover art for: There’s No Place Like Home

There’s No Place Like Home

Published: January 2020

The Arc conducted a national survey interviewing 726 people to understand how people make decisions about where they live and what they like about it. While more people with intellectual and developmental disabilities are living in the community than ever before, more work is necessary to ensure all people have options, choices, and opportunities. After all, there is no place like home.

Organisation: The Arc
Format: Youtube (videoY)
Region:United States of America
Cover art for: The Future of Home

The Future of Home

Published: June 2021

Just released, our Future of Home book brings to life what our future housing system could look like. It’s the culmination of over seven years of research by TACSI and other organisations just like us all over the world. Our hope is that this book stimulates the collective imagination of what could be, and how we might join up all the innovative work currently being conducted on the margins to build a better housing system.

Organisation: The Australian Centre for Social Innovation (TACSI)
Format: internet (web)
Region:Australia, Western Australia
Cover art for: Evaluation Of Homeshare Pilots

Evaluation Of Homeshare Pilots

Published: May 2018

This report outlines key learnings, opportunities and challenges from the evaluation of the Homeshare pilots programme (HSP).The Homeshare pilots initiative brings together  people  who need support to stay in their homes (known as householders), with young people and others (known as homesharers), who provide companionship and ten hours per week of low level practical support in return for an affordable place to live.

Authors: Tarran Macmillan, Jackie Gallagher, Melissa Ronca, Tim Bidey, Perla Rembiszewski
Organisation: Homeshare UK
Format: Document (pdf)
Pages: 77
Region:International, United Kingdom
Cover art for: From Institutions to Community  Living for Persons with Disabilities:  Perspectives From the Ground

From Institutions to Community Living for Persons with Disabilities: Perspectives From the Ground

Published: July 2018

This report aims to support ongoing efforts to bridge the gap between the promise of law and policy, and the reality on the ground. The exclusion and isolation stemming from institutionalisation of persons with disabilities has prompted a recognition of the need to ensure that people with disabilities can live in the community on an equal basis with others.

Organisation: European Union Agency for Fundamental Rights
Format: Document (pdf)
Pages: 90
Region:International, European Union
Cover art for: Warehoused- Inappropriate Institutionalization of Texas Foster Youth

Warehoused- Inappropriate Institutionalization of Texas Foster Youth

Published: March 2019

Disability Rights Texas conducted an investigation to identify factors leading to the unnecessary, inappropriate and continued inpatient hospitalisation of foster youth. Initially admitted for 5 – 7 day emergency stays these children have remained in extended stays over many months after they were ready for discharge.

Authors: Beth Mitchell, Cindy Gibson, Cassandra Champion, Victoria Foster
Organisation: Disability Rights Texas
Format: Document (pdf)
Pages: 12
Region:United States of America
Cover art for: A Place to Call Our Own

A Place to Call Our Own

Published: December 2019

This report outlines the results of research conducted through a collaborative initiative led by Riverdale Immigrant Women’s Centre, the Centre for Equality Rights in Accommodation and the Institute for Research and Development on Inclusion and Society, entitled: Toronto – A Place to Call Our Own: Empowering Women to Take Action for Affordable Housing. The initiative convened indigenous, refugee women and women with intellectual and psychosocial disabilities – including gender non-conforming people and trans women who identify as members of these populations – to identify and deepen the city of Toronto’s understanding of the diverse systemic barriers that result in these groups’ experiences of homelessness, unsafe housing and housing insecurity.

Authors: Doris Rajan, Judy Shaw and Mercedes S. Zayas
Organisation: Institute for Research and Development on Inclusion and Society IRIS
Format: internet (web)
Region:Canada
Cover art for: No Place Like Home: The Economics of Independent Living

No Place Like Home: The Economics of Independent Living

Published: July 2017

Research indicates that, taken as a whole, the overall difference in cost between independent living and alterative ‘models of care’ are negligible. This paper argues that these new institutions are not necessarily cheaper options. Article 19 of the UN Convention on the Rights of Persons with Disabilities (CRPD) says that people with disabilities have the right to live independently in the community.

Author: Alice Squire and Pete Richmond
Organisation: Centre for Welfare Reform
Format: Document (pdf)
Pages: 23
Region:United Kingdom
Cover art for: First and Last : Closing Learning Disabilities Hospitals

First and Last : Closing Learning Disabilities Hospitals

Published: March 2008

This book documents some of the progress we have made as the institutions were closed and as people returned to communities and were offered support and the possibility of control and dignity.

Author: Mark Brend
Organisation: Choice Support
Format: Document (pdf)
Pages: 64
Region:United Kingdom
Cover art for: Federal Pre Budget Submission – A Place to Call Home

Federal Pre Budget Submission – A Place to Call Home

Published: January 2019

This pre-budget submission outlines a range of innovative ways that this housing crisis for people with disability can be solved now by the Federal Government. Many people with disability struggle to find a place to call home and there are a range of issues that make the housing market out of reach. The submission has been developed with input from the Summer Foundation, the Australian Network for Universal Design and National Shelter.

Organisation: People With Disability Australia (PWDA)
Format: Document (pdf)
Pages: 12
Region:Australia
Cover art for: Small Supports: A Paper to Challenge and Inform Transforming Care Partnerships

Small Supports: A Paper to Challenge and Inform Transforming Care Partnerships

Published: June 2020

This paper thinks about people with learning disabilities and /or autism who are living in secure settings (hospitals and ATUs). For some years a new informal group of support organisations has been evolving and  are committed to supporting people with learning disabilities, mental health issues and autism. Often the people supported have experienced a string of placements in inappropriate, segregated, out of area, secure settings. Usually, these placements failed or broke down not because of the person but because the service was wrong

Organisation: National Development Team for Inclusion (NDTi)
Format: Document (pdf)
Pages: 18
Region:United Kingdom
Cover art for: New Quasi-Institutions as Examples of  Human Service Unconsciousness.

New Quasi-Institutions as Examples of Human Service Unconsciousness.

Published: June 2016

This peer reviewed article raises important considerations in regard to the dynamics of institutionalization, the history of human services, and the Social Role Valorisation (SRV) theme of unconsciousness.

Authors: Elks, M.
Organisation: SRV Journal
Format: Journal (pdf)
Pages: 11
Region:International
Cover art for: Relocating people with intellectual disability to new accommodation and support settings: Contrasts between personalized arrangements and group home placements

Relocating people with intellectual disability to new accommodation and support settings: Contrasts between personalized arrangements and group home placements

Published: November 2015

This study provided a unique comparison of three accommodation and support options for persons with intellectual disability. From the information gathered – mostly from the people supported themselves – the new living arrangements seemed to produce better outcomes for them compared to the lives of their peers who continued to live in congregated settings. This confirms much of the international literature reviewed and people who moved to personalized arrangements generally seemed to fare better than those who moved to group homes.

Authors: Roy McConkey, Fiona Keogh, Brendan Bunting, Edurne Garcia Iriarte and Sheelah Flatman Watson
Organisation: Journal of Intellectual Disabilities
Format: Journal (pdf)
Pages: 12
Region:European Union
Cover art for: From Institutions to Community Living

From Institutions to Community Living

Published: June 2017

“Recognizing the right to live in the community is about enabling people to live their lives to their fullest within society. It is a foundational platform for all other rights: a precondition for anyone to enjoy all their human rights is that they are within and among the community.” This report is one of a series of three reports looking at different aspects of deinstitutionalisation and independent living for persons with disabilities.

Organisation: European Union Agency for Fundamental Rights
Format: Document (pdf)
Pages: 27
Region:European Union
Cover art for: Inquiry into Violence, Abuse and Neglect against People with Disability in Institutional and Residential Settings

Inquiry into Violence, Abuse and Neglect against People with Disability in Institutional and Residential Settings

Published: August 2015

This Submission from the Australian Cross Disability Alliance is the culmination of more than two decades of people with disability and their allies campaigning and advocating for a national, independent inquiry to investigate violence and abuse against people with disability in institutional and residential settings. One of the most pervasive human rights abuses experienced by people with disability is their segregation, isolation and confinement from the community in institutional and residential settings. The ACDA was founded by, and is made up of four national cross-disability DPOs: First Peoples Disability Network Australia (FPDNA); Women With Disabilities Australia (WWDA); National Ethnic Disability Alliance (NEDA); and People with Disability Australia (PWDA).

Authors: Frohmader, C., & Sands, T.
Organisation: Australian Cross Disability Alliance
Format: Document (pdf)
Pages: 71
Region:Australia
Cover art for: Convention on the Rights of Persons with Disabilities Research Report – Easy Read

Convention on the Rights of Persons with Disabilities Research Report – Easy Read

Published: September 2020

This Easy Read report is a summary of a report called Convention on the Rights of Persons with Disabilities: Shining a light on Social Transformation.

Organisations: Australian Royal Commission into Violence ,Abuse, Neglect and Exploitation of People with Disability
Format: Document (pdf)
Region:Australia
Cover art for: Inclusion Australia: Submission to the NDIS Home and Living Consultation

Inclusion Australia: Submission to the NDIS Home and Living Consultation

Published: September 2021

The National Disability Insurance Agency (NDIA) released a consultation paper about their new approach to Home and Living, called ‘An Ordinary Life at Home’ in June 2021. Inclusion Australia’s submission in response to the paper includes feedback on the Home and Living Paper, recommendations for the NDIS Home and Living policy and case studies to help the NDIA better understand the lived experiences of people with disability and their supporters.

Organisation: Inclusion Australia
Format: Document (pdf)
Pages: 29
Region:Australia
Cover art for: Consultation Paper: An Ordinary Life at Home

Consultation Paper: An Ordinary Life at Home

Published: June 2021

The National Disability Insurance Agency is developing a Home and Living Policy that supports you to make your own decisions about where, how and who you live with. Consultation sessions were held  during a 12-week consultation period  between 21 June and 10 September 2021. This report provides a summary of the feedback received from people with a disability, families, carers, disability representative organisations, service providers, government departments, academics and health professionals.

Organisation: National Disability Insurance Scheme
Format: Document (pdf)
Pages: 28
Region:Australia
Cover art for: An Ordinary Life at Home – Easy Read

An Ordinary Life at Home – Easy Read

Published: June 2021

This report is about a new NDIS policy for Home and Living.

Organisation: National Disability Insurance Scheme
Format: Document (pdf)
Pages: 37
Region:Australia
Cover art for: Home and Living Options for People with Disabilities

Home and Living Options for People with Disabilities

Published: March 2021

The aim of this review by the Centre for Disability Studies – University of Sydney, was to understand the interventions and strategies that are being used to help people transition out of institutional care into more individualised home and living options.

Organisation: The Centre for Disability Studies
Format: Document (pdf)
Pages: 57
Region:Australia
Cover art for: 19 Stories of Social Inclusion – Easy Read

19 Stories of Social Inclusion – Easy Read

Published: June 2019

An easy to read guide to the research project on 19 Stories of Social Inclusion – Ireland: Stories of Belonging, Contributing and Connecting.

Authors: Christine Magee, Tomás Murphy, Margaret Turley, Michael Feely, Edurne García Iriarte, Roy McConkey and Inclusion Ireland
Organisation: Inclusion Ireland
Format: Document (pdf)
Pages: 9
Region:European Union
Cover art for: 19 Stories of Social Inclusion

19 Stories of Social Inclusion

Published: June 2019

What experiences of social inclusion do people with intellectual disabilities have in Ireland? While this research aims to demonstrate positive stories of social inclusion, it is worth bearing in mind that those people with intellectual disabilities who are living fully or partly socially included lives, are often doing so in spite of continued social exclusion and the prevalence of multiple barriers to inclusion in society. Participants expressed that social inclusion gave them a sense of belonging and contributing and placed great value on having choice and control in their lives. The report and stories demonstrate what successful implementation of Article 19 of the UNCRPD looks like. Included in the recommendations is a whole of government approach,  so that people with disabilities can access housing and the supports required to live independently.

Authors: Christine Magee, Tomás Murphy, Margaret Turley, Michael Feely, Edurne García Iriarte, Roy McConkey
Organisation: Inclusion Ireland
Format: Document (pdf)
Pages: 120
Region:European Union
Cover art for: Crystallising the Case for Deinstitutionalisation

Crystallising the Case for Deinstitutionalisation

Published: May 2021

This Report is about home. It is as simple and as powerful as that. Home is where we form our sense of self, the very stuff of our identity. We do so in close association with others. Home is also the material expression of self – a sort of scaffolding that holds us together. In our homes we see ourselves reflected back even in the small things like a flower vase or a family picture. It is quintessentially private. And home is exactly what is denied to large segments of the population.

Organisation: The London School of Economics and Political Science
Format: Document (pdf)
Pages: 72
Region:International, European Union
Cover art for: An Illusion of Care

An Illusion of Care

Published: March 2021

Vulnerability due to the increasing care needs of people who are ageing and/or who experience disabilities often triggers a search for ways and means of ensuring that those care needs can be provided for. That search often brings people to a startling reality in Ontario. There is a precious little support available other than placement in a long-term care facility. Ageing at home with support to do so is woefully unavailable for most people, despite this being a clear preference of many.

Author: Linda Till
Organisation: Seniors for Social Action
Format: Document (pdf)
Pages: 40
Region:Canada
Cover art for: Our Housing Rights

Our Housing Rights

Published: September 2021

On July 7th,2021 Inclusion Ireland and the Independent Living Movement Ireland (ILMI) held six focus groups on the issue of housing as this is the greatest issue for the members of both organisations at present.  This report is a reflection of their experiences at an individual level and also at a systemic level of trying to gain access to housing and the supports to live in a home of their own.

Organisation: Independent Living Movement Ireland
Author Link:https://ilmi.ie/
Format: Document (pdf)
Pages: 26
Region:European Union
Cover art for: Historical Timeline

Historical Timeline

Published: June 2012

People with disabilities have struggled for acceptance and equality for centuries now. They have been discriminated against, mistreated, misunderstood, oppressed, persecuted and sometimes killed due to prejudice, intolerance and indifference. This timeline lists some of the long struggle for equality in Canada while highlighting some of the victories.

Organisation: Inclusion Canada
Format: Document (pdf)
Pages: 2
Region:Canada
Cover art for: Comparative Analysis on the Implementation of Article 19 of United Nation Convention on the Rights of People with Disabilities in Eight European Countries

Comparative Analysis on the Implementation of Article 19 of United Nation Convention on the Rights of People with Disabilities in Eight European Countries

Published: June 2017

This study gives an overview of the experiences of eight different European countries with the transition from institutional to community care for vulnerable people, highlighting good practices and possible pitfalls.

Authors: Jean Pierre Wilken, Rait Kuuse, Zsolt Bugarszki and Hans van Ewijk
Organisation: Academia
Format: Journal (pdf)
Pages: 13
Region:European Union
Cover art for: Deinstitutionalisation and Life in the Community in Bulgaria: A Three-Dimensional Illusion

Deinstitutionalisation and Life in the Community in Bulgaria: A Three-Dimensional Illusion

Published: September 2021

One of the main conclusions that can be drawn from the lead author’s ten years of experience and the field research conducted for this report is that two
central characteristics remain unchanged within smaller group homes as compared with the old system and large-scale institutions. First is the continuing existence of an
institutional culture based on control of the residents and restrictions imposed by personnel. Second is the complete denial of personal choice for those placed in these new services when it comes to deciding on matters concerning them, nullifying any real chance for residents therein to exercise their autonomy and
independence.

Organisation: Validity Foundation
Format: Document (doc)
Pages: 29
Region:European Union
Cover art for: Segregation, Congregation and the Gaining of a Real Home

Segregation, Congregation and the Gaining of a Real Home

Published: January 1970

This article critiques the limits of group homes and suggests that with creativity and focus on what is ordinary and valued, we can start to build ordinary lives for people who will otherwise continue to exist in a lonely and unstimulating environment.

Author: Dr Bob Jackson
Organisation: Family Advocacy
Format: Document (pdf)
Pages: 2
Region:Australia
Cover art for: Institutionalisation, Disability and Ageing in the Czech Republic

Institutionalisation, Disability and Ageing in the Czech Republic

Published: September 2021

International human rights law obliges European Union (EU) nations to adopt all appropriate measures to ensure that older persons, and especially older persons with disabilities requiring support, have a right to choose and are not forced to live in a specific environment because of their age-dependent, disability-dependent, or age and disability-dependent situation. This paper outlines the obligations stemming from the CRPD (Article 19) and the European Social Charter(Article 14), with its Additional Protocol of 1988 (Article 4) and makes several recommendations including the introduction of legal changes preferring community-based services over institutions across the social and health care systems, budgetary schemes clearly prioritising community-based services for people of advanced age and particularly for elderly people with disabilities.

Author: Anna Hofschneiderová and Maroš Matiaško
Organisation: Validity Foundation
Format: Document (pdf)
Pages: 42
Region:European Union
Cover art for: Social Inclusion through Community Living: Current Situation, Advances and Gaps in Policy, Practice and Research

Social Inclusion through Community Living: Current Situation, Advances and Gaps in Policy, Practice and Research

Published: June 2018

This article draws on the findings of the EU Framework 7 project DISCIT to explore the living situation of people with disabilities a decade after the adoption of the UN Convention on the Rights of Persons with Disabilities in nine European countries representing different welfare state models and different stages in the process of deinstitutionalisation. A review of the research literature, policy and available statistics was combined with interviews with key informants in each country to explore the current living situation, changes over time and the barriers to, and facilitators for change.

Authors: Jan Šiška, Julie Beadle-Brown , Šárka Káňová and Pavlína Šumníková 1
Organisation: Cogitatio Press
Format: Document (pdf)
Pages: 16
Region:European Union
Cover art for: Independent living in Central and Eastern Europe? The challenges of post- socialist deinstitutionalization

Independent living in Central and Eastern Europe? The challenges of post- socialist deinstitutionalization

Published: June 2020

Chapter 2, published in “EU Social Inclusion Policies Top – Down and Bottom Up – Perspectives on Implementation  in Post- Socialist Countries” discusses efforts to realize the right of disabled people to independent living and community inclusion in the post- socialist Central and Eastern European (CEE) region.

Author: Teodor Mladenov and Gabor Petri
Format: Journal (pdf)
Pages: 18
Region:International, European Union
Cover art for: Submission to the Joint Standing Committee on the National Disability Insurance Scheme about Supported Independent Living (SIL)

Submission to the Joint Standing Committee on the National Disability Insurance Scheme about Supported Independent Living (SIL)

Published: September 2019

In this submission JFA Purple Orange make recommendations that align with the principles guiding action under the National Disability Insurance Scheme Act 2013, which echo Article 19 of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD). The NDIS Act states that “Reasonable and necessary supports for people with disability should support people with disability to live independently and to be included in the community as fully participating citizens” and that “People with disability should be supported to exercise choice…in the planning and delivery of their supports”.

Organisation: JFA Purple Orange
Format: Document (pdf)
Pages: 23
Region:Australia
Cover art for: Transitions from Institutions to Community Living in Europe

Transitions from Institutions to Community Living in Europe

Published: June 2016

The aim of this report was to develop recommendations to promote and sustain the development of community living for all people with disabilities. Living in the community (as opposed to an institution) is a central part of Active Citizenship. The DISCIT project has defined Active Citizenship in terms of ‘Security’ (Exercising both rights and duties; reciprocity and complementarity of the individual’s and the community’s responsibilities), ‘Autonomy’ (Exercising freedom of choice; taking responsibility for one’s own future and risk-protection) and ‘Influence’ (Exercising co-determination, individually or collectively, participating in self-organised, voluntary and political activities & in civil society). For all of these to be realised, being a part of society, physically as well as conceptually, is critical. The segregated, isolated nature of most institutions makes this very difficult and in many cases impossible.

Authors: Jan Šiška, Julie Beadle Brown and Šárka Káňová
Organisation: Cordis- European Commission
Format: Document (pdf)
Pages: 41
Region:European Union
Cover art for: Homeshare UK: Annual Sector Report 2021

Homeshare UK: Annual Sector Report 2021

Published: June 2021

Homeshare is proving slowly and steadily to be a resilient, stable and sustainable solution to many key policy issues, tackling loneliness and unaffordable housing by bringing people from across the generations together in a simple but effective way. The key groups of Householders using Homeshare in 2021 were older single people and older couples between the ages of 70 and 90. The network reported on other Householder groups including people with life limiting illness, people with disabilities and people with learning disabilities.

Organisation: Homeshare UK
Format: Document (pdf)
Pages: 13
Region:United Kingdom
Cover art for: Living independently and being included in the community: Czech Republic

Living independently and being included in the community: Czech Republic

Published: June 2019

This paper examines factual information and statistical data along with a critique and evaluation of Government commitments to living independently and being included in the community, including the transition from institutional care to community-based living.

Authors: Šiška, J.
Organisation: The Academic Network of European Disability Experts (ANED)
Format: Journal (pdf)
Pages: 30
Region:European Union
Cover art for: Critique of deinstitutionalisation in postsocialist Central and Eastern Europe

Critique of deinstitutionalisation in postsocialist Central and Eastern Europe

Published: November 2019

This paper looks at efforts to help disabled people in Central and Eastern Europe to live outside institutions, in the community. It argues that some countries in Central and Eastern Europe only pretend to help disabled people live in the community. In reality, these countries repair existing institutions or build new ones. The reasons for this are found in the history of these countries and in more recent policies such as cuts to social support.

Author: Teodor Mladenov and Gabor Petri
Organisations: Taylor & Francis Group: Disability and Society Journal
Format: Journal (pdf)
Pages: 23
Region:International
Cover art for: Returning Home: Piloting Personalised Support

Returning Home: Piloting Personalised Support

Published: June 2013

This report provides an overview of the design, goals and approach of a project called the Beyond Limits – to help people return home from institutional services.

Author: Simon Duffy
Organisation: Centre for Welfare Reform
Format: Document (pdf)
Pages: 41
Region:United Kingdom
Cover art for: Moving into new housing designed for people with disability: preliminary evaluation of outcomes

Moving into new housing designed for people with disability: preliminary evaluation of outcomes

Published: April 2022

This study is part of a larger mixed-methods research project designed to systematically evaluate individual experiences and outcomes of moving to and living in newly built, individualised models of housing for people with a disability over a 3-year period.

Authors: Jacinta Douglas, Dianne Winkler, Stacey Oliver. Stephanie Liddicoat and Kate D'Cruz
Organisation: Disability and Rehabilitation Journal
Format: Journal (pdf)
Pages: 9
Region:Australia
Cover art for: Younger People in Residential Aged Care: Strategy 2020-2025 – Easy Read

Younger People in Residential Aged Care: Strategy 2020-2025 – Easy Read

Published: September 2020

This Easy Read Strategy is a summary of the Younger People in Residential Aged Care Strategy 2020–2025.

Organisation: Australian Government Department of Social Services
Format: Document (pdf)
Region:Australia
Cover art for: Younger People in Residential Aged Care: Strategy 2020-2025

Younger People in Residential Aged Care: Strategy 2020-2025

Published: September 2020

The Australian Government targets seek to ensure that no people under the age of 65 will be living in aged care by 2025. On 25 November 2019, in response to the Royal Commission into Aged Care Quality and Safety’s interim report, Neglect, the Australian Government announced strengthened Younger People in Residential Aged Care (YPIRAC) targets and an intention to develop a strategy to meet those targets.

Organisation: Australian Government Department of Social Services
Format: Document (pdf)
Pages: 17
Region:Australia
Cover art for: Younger People in Residential Aged Care: Action Plan

Younger People in Residential Aged Care: Action Plan

Published: March 2019

The Australian Government will conduct an analysis of the characteristics of younger people in aged care to understand their needs and what works. This work will also improve data and reporting. This plan recognises and prioritises the rights of people to determine where they live. Younger people currently living in residential aged care will only be assisted to move where that is their goal and preference.

Organisation: Australian Government Department of Social Services
Format: Document (pdf)
Pages: 5
Region:Australia
Cover art for: Younger People in Residential Aged Care

Younger People in Residential Aged Care

Published: March 2022

This fact sheet provides a summary and highlights from the GEN Aged Care Data  resource page – Younger People in Residential Aged Care.

Organisation: Australian Institute of Health and Welfare
Format: Flyer (pdf)
Pages: 2
Region:Australia