Good Practice – Towards Independent Living – A collection of Examples from Europe
Published: March 2019
This Collection is a joint initiative of the European Network on Independent Living (ENIL) and the European Disability Forum (EDF). It features examples from different EU Member States, which to a different extent facilitate the right to live independently in the community.
Author: Lilia Angelova-Mladenova
Organisation: European Network on Independent Living and European Disability Forum
ACL’s creation was rooted in the fundamental idea that people with disabilities or functional limitations of any type, regardless of age, have a common interest in being able to access home and community-based supports and services. And further, that these supports make the difference in ensuring that they can fully participate in all aspects of society, including the option to live at home.
The Independent Living Institute (ILI) is a policy development centre specialising in consumer-driven policies for disabled peoples’ freedom of choice, self-determination, self-respect and dignity. Our ultimate goal is to promote disabled people’s personal and political power.
This Myth buster is aimed at all those advocating for ESI Funds to be used to support the right to independent living, and for those involved in the programming, implementation and monitoring of these funds.
Organisation: European Network on Independent Living
The Zero Project Report 2019 on Independent Living and Political Participation
Published: January 2019
66 Innovative Practices, 10 Innovative Policies, from 41 countries International study on the implementation of the UN Convention on the Rights of Persons with Disabilities – “For a World without Barriers”
Authors: Thomas Butcher, Peter Charles, Loic van Cutsem, Zach Dorfman, Micha Fröhlich, Seena Garcia, Michael Fembek, Wilfried Kainz, Seema Mundackal, Paula Reid, Venice Sto.Tomas, Marina Vaughan Spitzy
Independent Living is the daily demonstration of human rights-based disability policies. Independent Living is possible through the combination of various environmental and individual factors that allow disabled people to have control over their own lives. This includes the opportunity to make choices and decisions regarding where to live, with whom to live and how to live.
Organisation: European Network on Independent Living
Barriers to Independent Living for Individuals with Disabilities and Seniors
Published: 11th June 2014
Findings not only revealed a high degree of overlap between identified barriers and their importance ratings within groups but also showed clear differences in potential barriers across the groups assessed (individuals with disabilities and senior citizens).
Authors: Florence D. DiGennaro Reed, Michael C. Strouse, Sarah R. Jenkins, Jamie Price, Amy J. Henley & Jason M. Hirst
Organisation: Association for Behavior Analysis International
Moving to my home: housing aspirations, transitions and outcomes of people with disability
Published: August 2015
he study sought to identify the barriers but also the success factors that enable people with disability with individualised funding packages to move into housing which better suits their preferences and needs. The focus was on the aspirations and experiences of people with disability as consumers of housing.
Authors: Ilan Wiesel, Carmel Laragy, Sandra Gendera, Karen R. Fisher, Samantha Jenkinson, Trish Hill, Kate Finch, Wendy Shaw and Catherine Bridge
Organisation: Australian Housing and Urban Research Institute
Reasonable and Necessary Support across the Lifespan: An Ordinary Life for People with Disability
Published: October 2014
The paper takes an ‘ordinary life’ in 21st century multicultural Australia as its starting point because people with disability share the ordinary aspirations of their peers without disability but need reasonable and necessary NDIS support to achieve them. The ordinary life provides clues as to how these aspirations would typically be met providing a useful benchmark to guide understanding of reasonable and necessary support.
Organisation: Independent Advisory Council to the National Disability Insurance Scheme
Basic Income Plus: Is UBI consistent with the goals of the Independent Living Movement?
Published: 2nd November 2019
UBI is a technical and political system for redistributing money directly to citizens. There are many good reasons to believe that such a system could have many positive impacts in terms of advancing human rights and reducing inequality.
This paper asks the Cabinet Social Policy Committee to note decisions taken by the Minister of Health and Associate Minister of Health (Hon Tariana Turia) to demonstrate “Choice in Community Living”, which is an alternative to residential services for people with disabilities.
Meeting Canada’s Obligations to Affordable Housing and Supports for People with Disabilities to Live Independently in the Community: Under Articles 19 and 28
Published: May 2017
This submission is about the housing and supports gap facing persons with disabilities in Canada. It responds to the Special Rapporteur on adequate housing`s questionnaire and provides information for her report to the United Nations General Assembly 72nd session on the right to adequate housing of persons with disabilities.
Organisations: Alzheimer Society of Canada, ARCH Disability Law Centre Canadian Association for Community Living Canadian Mental Health Association, Toronto Branch Council of Canadians with Disabilities IRIS – Institute for Research and Development on Inclusion and Society People First of Canada Social Rights Advocacy Centre Wellesley Institute
Getting a Life – Living Independently and Being Included in the Community
Published: April 2012
The purpose of this Study is to explore and set out the minimum conditions necessary to implement the UN Convention on the Rights of Persons with Disabilities, particularly the right to live independently and be included in the community.
Organisation: Office of the United Nations High Commissioner for Human Rights Regional Office for Europe
Grounding The Right To Live In The Community (CPRD Article 19) In The Capabilities Approach To Social Justice
This paper brings to bear the capabilities approach, a normative framework about human well-being, social development and social justice, to this central concern in disability rights, mental health ethics, and international human rights law.
Authors: Emma Wynne Bannistera, Sridhar Venkatapuramb
Organisation: International Journal of Law and Psychiatry
Living in your own home with a disability – the experiences of people with disabilities of support from their community
Published: July 2012
The research report contains information gathered from interviews with 54 people with physical, sensory, intellectual and cognitive impairments aged between 19 and mid-60s living in six different parts of Ireland.
Authors: Hugh O’Connor, Maureen Gilbert and Bríd McGrath
Organisation: OCS Consulting For the National Disability Authority
Understanding Independent Living In Sweden An Overview
Published: May 2019
The main purpose of this document is to provide a collection of information that will help to build a basic foundation of knowledge regarding the Independent Living Institute as an organization, the political and legal systems in Sweden, and the functions of overarching international institutions that influence the Independent Living Institute’s work.
YDAS PDF Project Housing and Support for Younger People
Published: June 2013
This project provided an opportunity for the voice of younger people with disabilities to be heard in shaping policy and practice with respect to housing and support in a new disability funding paradigm, DisabilityCare Australia, a National Disability Insurance Scheme.
Authors: Dr. George Taleporos, David Craig, Mark Brown, Cath McNamara and Sarah Forbes
Organisation: Youth Affairs Council of Victoria Inc. and Youth Disability Advocacy Service
The use of group homes as a housing and support option for people with disabilities emerged in the Canadian and other countries context in the early 1970’s. It is now almost a half century later and these models have become quite extensive in number throughout Canada and elsewhere.
Conundrums of supported living: The experiences of people with intellectual disability
Published: 14th November 2016
Dissatisfaction with the inflexibility of the group home model has led to the growth of supported living that separates housing from support and is thought to have greater potential for better quality of life outcomes. Comparative studies have had mixed findings with some showing few differences, other than greater choice in supported living. By investigating service user experiences of supported living this study aimed to identify how the potential of supported living might be better realised.
Authors: Christine Bigby, Emma Bould and Julie Beadle-Brown
Curtin Individual Supported Living Manual 2nd Edition
Published: May 2017
The Manual builds on a Framework that was developed over two research projects carried
out between 2007 and 2011. This revised version was produced after the completion of a third
research project carried out over 2015-2017.
Authors: Professor Errol Cocks, Dr Stian H Thoresen
Organisation: Curtain University School of Occupational Therapy and Social Work
IAC Report Pathway to Innovative and Contemporary Options of Housing and Support
Published: May 2018
This paper is underpinned by the United Nations Convention of the Rights of Persons with Disabilities (UNCRPD) as outlined in the Objects of the NDIS Act. Article 19 of the UNCRPD – Living independently and being included in the community – outlines the most pertinent requirement in relation to housing and support; enabling NDIS participants the opportunity to choose where they live, with whom they live and have access to a range of in-home, residential and other services to support living and inclusion in the community.
In 2017 Inclusion BC and Community Living BC came together over the shared issue of inclusive housing for people with developmental disabilities. Together they formed the Inclusive Housing Task Force made up of people with lived and professional experience with inclusive housing and drew upon the expertise of approximately 80 individuals from around the province through a Housing Forum held in January 2018.
Organisation: Community Living BC and Inclusion BC Inclusive Housing Task Force