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Self Determination

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Cover art for: Creating High Quality Individualised Outcomes

Creating High Quality Individualised Outcomes

Published: May 2015

Most countries have established (or are establishing) national policy work on a range of innovative funding approaches. These approaches are instrumental in changing the way in which services to people with a disability are developed and delivered and are indicative of a world wide movement towards greater self direction by people with disabilities over the supports which they receive and greater self determination over how they choose to live their lives.

Format: Document (pdf)
Pages: 29
Region:Australia, International, Canada, New Zealand, United Kingdom
Cover art for: A New Way Home

A New Way Home

Published: December 2017

A New Way Home, a personalised approach for leaving institutions. People with learning disabilities and challenging behaviour have continued to be placed in long-stay institutions, often a long way from home. New ‘placements’ of this kind have not always been avoided, and some people have not yet been afforded the opportunity to plan for their departure. This travel guide demonstrates tried and trusted methods for navigating the difficult road home. (The guide demonstrating how to avoid that difficult journey in the first place is perhaps for another day, though its outline can be discerned from the principles and practices described here.) But it also affords all of us, as concerned citizens, a set of principles, ideas and practices we can use to hold each other account in making sure these journeys are taken.

Author: Frances Brown and John Dalrymple
Organisation: Centre for Welfare Reform
Format: Document (pdf)
Pages: 70
Region:International, United Kingdom
Cover art for: Tom Nerney Story

Tom Nerney Story

Published: January 2010

Tom Nerney – Defining Self-Determination – Leading national expert on self-determination, Tom Nerney, explains self-determination and the restoration of citizenship from 3 levels: personal, organizational, and political. He cites 4 universal human aspirations important to focus on: a place to call home, community membership, relationships, and work.

Author: Tom Nerney
Format: Youtube (videoY)
Region:International, United States of America
Cover art for: 5 Valued Experiences

5 Valued Experiences

This video explores a framework for thinking that John and Connie began to develop more than 40 years ago, incorporating the five valued experiences and the five accomplishments that can shape the intent, focus, and delivery of support.
Authors: Connie Lyle- O'Brien, John O'Brien
Organisation: Neighbours International Inc.
Format: Youtube (videoY)
Region:International, United States of America
Cover art for: Young People in Nursing Homes – National Alliance

Young People in Nursing Homes – National Alliance

Our mission is to ensure choice in accommodation and support options for young Australians with high or complex support needs; and support young people, their families and social networks in the exercise of that choice.

Organisation: Young People in Nursing Homes - National Alliance
Format: internet (web)
Region:Australia
Cover art for: What is Article 12 and Legal Capacity?

What is Article 12 and Legal Capacity?

Published: June 2016

The UN Convention on the Rights of Persons with Disabilities (UN CRPD) is a binding United Nations human rights treaty for persons with disabilities – Signed and ratified by almost all EU Member States and the EU itself. Article 12. of the UNCRPD wants to ensure that every person with disabilities including people with psychosocial disabilities may enjoy equal recognition before the law which requires legal capacity. This short animated video seeks to explain what legal capacity is all about and recalls that everyone has the inherent right to make their own choices including people with psychosocial disabilities.

Organisation: Mental Health Europe (MHE)
Format: Youtube (videoY)
Region:International
Cover art for: Talking Rights

Talking Rights

Consulting with Victoria’s Indigenous community about the right to self-determination and the Charter. The Victorian Equal Opportunity and Human Rights Commission (the Commission)engaged SED Consulting to consult with Victoria’s Indigenous community about the right to self-determination, for inclusion in the Commission’s 2010 Report on the operation of the Charter of Human Rights and Responsibilities.

Organisation: Victorian Equal Opportunity and Human Rights Commission
Format: Document (pdf)
Pages: 29
Region:Australia
Cover art for: Self-Determination: Theory of Motivation

Self-Determination: Theory of Motivation

This article explores Self Determination Theory and why intrinsic motivation matters.

Author: Courtney E. Ackerman
Organisation: Positive Psychology
Format: internet (web)
Region:International, European Union
Cover art for: Wiyi Yani U Thangani (Women’s Voices): Securing Our Rights, Securing Our Future  Report 2020

Wiyi Yani U Thangani (Women’s Voices): Securing Our Rights, Securing Our Future Report 2020

The Wiyi Yani U Thangani engagement process and this report is grounded in the right of Aboriginal and Torres Strait Islander women and girls to self-determination. For indigenous peoples globally, many of whom are constantly having to negotiate the recognition of their unique rights as distinct peoples within colonised nations, the right to self-determination is highly significant. Despite the commitment of nations to the right of self-determination, indigenous peoples globally continue to struggle to have their unique and distinct rights recognised.

Organisation: Australian Human Rights Commission
Format: Document (pdf)
Region:Australia, Western Australia
Cover art for: Right to Self Determination

Right to Self Determination

The system of Government established under the Commonwealth Constitution involves the exercise of the right to self determination by the whole Australian people.

Organisation: Australian Human Rights Commission
Format: internet (web)
Region:Australia
Cover art for: The Complexities of Choice

The Complexities of Choice

Published: June 2019

Connie Lyle-O’Brien and John O’Brien explore the complexity of choice for people with developmental disabilities in the absence of a breadth of experience, and a strong network of relationships.

Authors: Connie Lyle- O'Brien, John O'Brien
Organisation: Neighbours International
Format: Youtube (videoY)
Region:International, United States of America
Cover art for: Exploring the links between psychological flexibility, individual wellbeing, and relationship quality

Exploring the links between psychological flexibility, individual wellbeing, and relationship quality

This registered report presents two studies that investigate the links between psychological flexibility, individual well-being, and relationship quality. This study explores the associations and potential overlap between psychological flexibility and the self-determination variables (i.e., impersonal, control, and autonomous orientations).

Authors: Karen Twiselton; Sarah C. E. Stanton; David Gillanders; Ewan Bottomley
Organisation: International Association for Relationship Research
Author Link:https://iarr.org/
Format: Journal (pdf)
Region:International, United Kingdom
Cover art for: Implementing Self Determination Initiatives

Implementing Self Determination Initiatives

Notes by John O’Brien, based on his learnings and response to the Robert Wood Johnson Foundation’s request for proposals for self-determination systems change initiatives.

Author: John O'Brien
Format: Document (pdf)
Region:International, United States of America
Cover art for: Self Determination, Indigenous Peoples and Minorities

Self Determination, Indigenous Peoples and Minorities

The paper begins with an examination of the evolution of self-determination. Second, it will attempt to demonstrate the manner in which self-determination has been interpreted through a brief analysis of United Nations (UN) documents relating to self-determination.

Authors: Joshua Castellino & Jeremie Gilbert
Format: Journal (pdf)
Region:International, United Kingdom
Cover art for: What Is Self Determination and Why is it Important?

What Is Self Determination and Why is it Important?

The purpose of the Gateway to Self-Determination Project is to “scale-up” efforts to promote the self-determination of people with disabilities. This publication was developed to help communicate, through the stories of people with disabilities, what is meant by self-determination and why it is important that people with disabilities receive the supports they need to live self determined lives. Quite simply, being self-determined means making things happen in a person’s own life, instead of having others do things to, or for them.

Organisations: US Department of Health and Human Services, Administration on Developmental Disabilities
Format: Document (pdf)
Region:International, United States of America
Cover art for: Leadership for Self Determination

Leadership for Self Determination

Published: June 1999

This report summarizes a retreat for people interested in the North Carolina Self-determination Leadership Network held at Aqueduct on 18-19 June 1999.facilitated by John O’Brien, who prepared this summary from a set of posters and notes made during the retreat and checked for accuracy with participants through verbal summaries. This summary does not reflect the position of any group or organization represented by retreat participants.

Author: John O'Brien
Organisations: Center for Development and Learning at the University of North Carolina, Chapel Hill
Format: Document (pdf)
Pages: 18
Region:United States of America
Cover art for: What is Article 19 and Independent Living?

What is Article 19 and Independent Living?

Published: June 2016

The UN Convention on the Rights of Persons with Disabilities (UN CRPD) is a binding United Nations human rights treaty for persons with disabilities. This short-animated video seeks to explain what Art 19 and independent living means for all people with disabilities, including people with psychosocial disabilities.

Organisation: Mental Health Europe (MHE)
Format: internet (web)
Region:International
Cover art for: Self-Directed Support: If It’s So Good Then Why is it So Hard?

Self-Directed Support: If It’s So Good Then Why is it So Hard?

Published: June 2018

The central idea explored in this paper is Self-Directed Support. This is the term some of us use to describe a system of organising help so that the person who receives help is in control. This is not the reality for many people who receive state-funded assistance. Often the person does not control the help they receive, instead they are passive and support is often institutional in character. Self-Directed Support is about organising things so that people are not passive, instead they are active citizens, able to control the assistance they receive, in control of their own lives, and able to play an active part in community life.

Author: Simon Duffy
Organisation: The Centre for Welfare Reform
Format: Document (pdf)
Pages: 38
Region:International, United Kingdom
Cover art for: Deinstitutionalisation for Children in Greece

Deinstitutionalisation for Children in Greece

Published: June 2021

Greece is among the Member States in which the European Commission identified the need for deinstitutionalisation (DI) reforms to create support systems in the community. This animation is an awareness raising video of children transitioning into new communities and their right to self determination.

Organisation: European Association of Service Providers for Persons with Disabilities EASPD
Format: Youtube (videoY)
Region:International, European Union
Cover art for: Deinstitutionalisation for Adults in Greece

Deinstitutionalisation for Adults in Greece

Published: June 2021

Greece is among the Member States in which the European Commission identified the need for deinstitutionalisation (DI) reforms to create support systems in the community. This animation is an awareness raising video of adults transitioning into new communities and their right to self determination.

Organisation: European Association of Service Providers for Persons with Disabilities EASPD
Format: Youtube (videoY)
Region:International, European Union
Cover art for: I’m Here to Help

I’m Here to Help

Published: January 2015

Most studies on the implementation of the NDIS have focused on the basic tenets of “choice and control”. This study extended the idea by exploring the Objects and Principles of the National Disability Insurance Scheme (NDIS) Act 2013, and by proposing five service-quality indicators to guide how “choice and control” can best be achieved. The study identified strategies to enable both the support-worker and the service-user in the process of user-direction.

Authors: Professor Lesley Chenoweth, Dr Margaret Ward, Ms Jacquie Hughes
Organisation: Griffith University
Format: Document (pdf)
Pages: 51
Region:Australia
Cover art for: Five Valued Experiences with John O’Brien

Five Valued Experiences with John O’Brien

Published: July 2021

Genia Stephen, in her ‘Good Things In Life’ podcast series invites John O’Brien to talk about belonging, respect, sharing spaces, contribution, and choice. Those are the five valued experiences for the good things in life, as defined by John O’Brien.

Authors: Genia Stephens, John O'Brien
Organisation: The Good Things In Life
Format: internet (web)
Read time: 75 min(Approximate)
Region:Canada
Cover art for: What Does Good Look Like?

What Does Good Look Like?

Published: July 2020

The paper is written as a commentary  about the development of Independent Support Brokerage in the UK and also examines some of the practices, challenges and restrictions which have held people back and prevented them from realising their hopes and aspirations for a good life; and provides a simple lens which could be used as a basis for reviewing changes to policy and practice – enabling a real shift towards citizenship for all.

Author: Liz Leach Murphy and Sarah Holmes
Organisation: Imagineer
Format: Document (pdf)
Pages: 26
Region:International, United Kingdom
Cover art for: Growing Self Direction from the Ground Up

Growing Self Direction from the Ground Up

Published: June 2021

Presentation slides from the Applied Self- Direction Virtual Conference held in June 2021.

Organisation: The Alliance for Citizen Directed Support
Format: Presentation (pdf)
Pages: 14
Region:International, United States of America
Cover art for: David Pitonyak Story

David Pitonyak Story

Published: January 2010

David Pitonyak – Defining Self-Determination – “The strategic resource in all of this is knowing people in a meaningful sense and helping them determine what will be useful to them. ” As relational beings, we need to have relationships and be in relationship with others.

Author: David Pitonyak
Organisation: Wisconsin Board for people with developmental disabilities
Format: Youtube (videoY)
Region:United States of America
Cover art for: Individualised Living- Choice

Individualised Living- Choice

Published: November 2021

Leanne Pearman from WA’s Individualised Services describes how Individualised support is the ability of someone to live how they choose to live – in their own home. Like anyone else, people living with disability have rewarding friendships, romantic relationships and a sense of community. Living in your own home means you can create and conduct those relationships on your own terms.

Author: Leanne Pearman
Organisation: The Canberra Times
Format: internet (web)
Region:Australia
Cover art for: Community Circles

Community Circles

Published: June 2021

A Community Circle brings people together to help someone to live a more connected life, Community Circles support people to do what matters to them. They are about finding out what is important to the person, and thinking together about how to turn that purpose into meaningful action. It is also a way to help people self direct their lives through supporting their decision making, ensuring choice and control.

Organisation: Community Circles Australia
Format: Flyer (pdf)
Pages: 2
Region:Australia
Cover art for: Independent Living for a Life of Self-Determination

Independent Living for a Life of Self-Determination

Published: March 2022

The Independent Living Institute (ILI) of Sweden works to promote the opportunities for people with disabilities for more personal and political power, self-determination, full participation and equality through information, education, consultancy and development projects. This essay from Jamie Bolling ILI Operations Manager and Article 19 as a tool project manager – tells the story behind the IL movement, explains the concepts and explains what Independent Living means.

Author: Jamie Bolling
Organisation: Independent Living Institute
Format: internet (web)
Region:European Union
Cover art for: Seven Threads Prompt Book

Seven Threads Prompt Book

Published: March 2022

Practical prompts to help non-Aboriginal and Torres Strait Islander organisations engage First Nations Peoples and foreground First Nations’ wisdom, so that together, we can further reconciliation, self-determination and change.

Organisation: The Australian Centre for Social Innovation (TACSI)
Format: Document (pdf)
Pages: 11
Region:Australia
Cover art for: Tracy’s Story

Tracy’s Story

Published: May 2018

Tracy packed up her home in Florida and moved to Georgia in 2005, where she teaches at the University of Georgia. In this video Tracy shares her positive philosophy of life and love of the outdoors.

Author: Tracy Rackensperger
Organisation: Institute on Human Development and Disability
Format: Youtube (videoY)
Region:United States of America
Cover art for: WAiS Supported Decision Making Guide

WAiS Supported Decision Making Guide

Published: July 2017

At WAiS, we work together with people, families and the disability sector to develop a practical approach to supported decision-making, our learning is compiled into this Supported Decision Making Guide.

Organisation: WA's Individualised Services
Format: Document (pdf)
Pages: 68
Region:Western Australia
Cover art for: WAiS Supported Decision Making Principles

WAiS Supported Decision Making Principles

Published: July 2017

The Principles of Supported Decision Making in an easy to understand one page resource.

Organisation: WA's Individualised Services
Format: Poster (pdf)
Pages: 1
Region:Western Australia
Cover art for: My Home, My Way: Workbook

My Home, My Way: Workbook

Published: November 2022

This workbook accompanies the My Home, My Way Guidebook.

Organisation: Belonging Matters
Format: Worksheet (pdf)
Pages: 14
Region:Australia
Cover art for: My Home, My Way: Guidebook

My Home, My Way: Guidebook

Published: November 2022

This Guide forms part of NACBO’s My Home, My Way project, which offers practical advice, activities and stories of people with developmental disability living in their own home, making a home on their terms with support from their allies and families.

Organisation: National Alliance of Capacity Building Organisation’s (NACBO)
Format: Document (pdf)
Pages: 68
Region:Australia
Cover art for: What Is Supported Decision Making?

What Is Supported Decision Making?

Published: November 2022

This animation describes the process of practical assistance with decision making to people who need support.

Organisation: WA's Individualised Services
Format: Vimeo (videoV)
Region:Western Australia
Cover art for: PLAN: Al Etmanski talks about PLAN Networks

PLAN: Al Etmanski talks about PLAN Networks

Published: January 2012

Relationships are the core of what we do. Work with us to give your loved one a network of caring relationships, a sound financial plan, opportunities for contribution and supported decision-making, and a place to call home….

Author: Al Etmanski
Organisation: PLAN Canada
Author Link:www.plan.ca
Format: Youtube (videoY)
Region:Canada